by Callie | Sep 14, 2017 | chronic disease, chronic illness, creative, creativity, diagnosis, discouragement, encouragement, Grief, hope
After I came home from the “death session” (the cystoscopy which diagnosed Interstitial Cystitis), I found myself in a new predicament: I felt foreign; like an alien in my own skin. My thoughts were broadcasting in German, or Russian, or some sort of combination of...
by Callie | Aug 4, 2017 | beautiful, chronic disease, chronic illness, creative, creativity, hope, Uncategorized
Today I want to blubber about breakfast. I know it’s quite the detour from chronic illness support and my “youzhe“, but while eating breakfast in the Starbuck’s of our hotel in Nashville, as I glanced over and saw the disheveled family sitting near us, it dawned...
by Callie | Jul 15, 2017 | chronic disease, chronic illness, creative, creativity, hope, Uncategorized
My husband and I have lived in our house for four and a half years and I am finally painting our bedroom. I hate painting. I hate painting trim the most. I hate priming the trim even more. I was considering my dark feelings toward the process and I came to...
by Callie | Jul 13, 2017 | beautiful, chronic disease, chronic illness, creative, creativity, diagnosis, discouragement, encouragement, Grief, hope, Uncategorized
It seems obvious, but half of the terrible things you go through as someone with a chronic disease are caused by other people. And that’s sad. Rather sad. Ruthlessly sad. One should not have to prove their pain, and yet, most of us with chronic disease have had...
by Callie | Jul 8, 2017 | beautiful, chronic disease, chronic illness, creative, creativity, discouragement, encouragement, hope, Uncategorized
I brought my kids over to make “pigs in a blanket” at my grandparents’ this week. They played with giant bubbles, rode on my mom’s rocking horse from the 1950’s, and ran around the billiard table my grandpa keeps in the basement amongst items from a bygone era. On one...
by Callie | Jul 7, 2017 | chronic disease, chronic illness, creative, creativity, CSF Leak, diagnosis, discouragement, encouragement, hope, suicidal thoughts, suicide
As I was scrolling through Facebook yesterday, I was caught by a post someone had left on my husband’s cousin’s page. It was the most beautifully crafted support of a friend. In it, the author, Farzeen, discussed the injury my “cousin-in-law”...
