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The Truth About a Chronic Disease Flare

The Truth About a Chronic Disease Flare

by Callie | Jul 20, 2017 | chronic disease, chronic illness, discouragement, encouragement, hope, Uncategorized

I’ve had a tough week inside my skull, a place I like to call my turtle shell.  It’s a place I retreat to, especially when things are not so spiffy, and sometimes I catch my thoughts ricocheting off of every wall. After several months of minimal, almost zero symptoms,...
The Importance of Persistence

The Importance of Persistence

by Callie | Jul 15, 2017 | chronic disease, chronic illness, creative, creativity, hope, Uncategorized

My husband and I have lived in our house for four and a half years and I am finally painting our bedroom. I hate painting.    I hate painting trim the most.  I hate priming the trim even more. I was considering my dark feelings toward the process and I came to...
Our Pain is Real

Our Pain is Real

by Callie | Jul 13, 2017 | beautiful, chronic disease, chronic illness, creative, creativity, diagnosis, discouragement, encouragement, Grief, hope, Uncategorized

It seems obvious, but half of the terrible things you go through as someone with a chronic disease are caused by other people. And that’s sad. Rather sad. Ruthlessly sad. One should not have to prove their pain, and yet, most of us with chronic disease have had...
Chronic Disease is Hard

Chronic Disease is Hard

by Callie | Jul 8, 2017 | beautiful, chronic disease, chronic illness, creative, creativity, discouragement, encouragement, hope, Uncategorized

I brought my kids over to make “pigs in a blanket” at my grandparents’ this week. They played with giant bubbles, rode on my mom’s rocking horse from the 1950’s, and ran around the billiard table my grandpa keeps in the basement amongst items from a bygone era. On one...
Spinal CSF Leak

Spinal CSF Leak

by Callie | Jul 7, 2017 | chronic disease, chronic illness, creative, creativity, CSF Leak, diagnosis, discouragement, encouragement, hope, suicidal thoughts, suicide

As I was scrolling through Facebook yesterday, I was caught by a post someone had left on my husband’s cousin’s page.  It was the most beautifully crafted support of a friend. In it, the author, Farzeen, discussed the injury my “cousin-in-law”...
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